We try to keep abreast of the latest news and information relevant to people interested in FCS. Please tell us about any developments we have missed by contacting us
New role for our Chair
We’re delighted to announce that our Chair, Jill Prawer, will be joining FH Patients Europe as Rare…
We’ve joined the European FH Patients Network!
We’re delighted to announce that we have joined the European FH Patients Network. The European FH Patient…
Video: FCS Information Session
We were happy to host Fiza Javed who gave us a wide-ranging presentation on FCS. Fiza covers many aspects of FCS including diagnostics, understanding lipids, and previously studied and current medications and takes the time to explain the medical terms which can often be so confusing.
Spotlight Edition on FCS
Read the Rare Revolution Spotlight Edition on Familial Chylomicronaemia Syndrome, published to celebrate FCS Awareness Day.
Positive decision on Volanesorsen from NICE
NICE have issued a positive Final Evaluation Document (FED) for Volanesorsen for the treatment of FCS for…
