Action FCS is the UK charity for people affected by Familial Chylomicronaemia Syndrome (FCS)

FCS is an ultra-rare genetic condition.  People with FCS can't eat fat as they don't have the enzyme which breaks it down, or what enzyme they have doesn't work properly.

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Report from our February meeting

We had a wonderful time in Birmingham when patients, parents, and carers spent time meeting each other, with lots of learning from all the experts around us. Read our report.

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The Facts about FCS

Learn more about FCS and its diagnosis

Symptoms of FCS

Learn more about the symptoms of FCS

Medications for FCS

Learn how FCS is treated

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Recipes

Frozen Banana

Great as a quick snack for hot days.

View recipe

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In partnership with the rare disease community

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