Posts by Jill
FCS Awareness Day 2022
Friday 4th November 2022
Read MoreVideo: FCS Information Session
We were happy to host Fiza Javed who gave us a wide-ranging presentation on FCS. Fiza covers many aspects of FCS including diagnostics, understanding lipids, and previously studied and current medications and takes the time to explain the medical terms which can often be so confusing.
Read MoreFin
I am the father of three boys, two of whom have been diagnosed with Lipoprotein Lipase Deficiency (FCS), one born in 2000 and the other in 2006, our oldest son doesn’t have the condition. We discovered the condition when our youngest son was 3 months old. He had started to vomit his feeds (he was…
Read MoreFCS Information session
Join us for an information on FCS
Read MoreSpotlight Edition on FCS
Read the Rare Revolution Spotlight Edition on Familial Chylomicronaemia Syndrome, published to celebrate FCS Awareness Day.
Read MoreFCS Awareness Day 2021
Take the FCS 10g Fat Challenge!
Read MoreVirtual meeting
Tuesday October 20th, 7pm-8.30pm
Meet Dr Charlotte Dawson, consultant in metabolic medicine, Queen Elizabeth Hospital, Birmingham.
Chicken and Sweet Corn Noodle Soup
Tasty soup that’s easy to make.
Read MorePositive decision on Volanesorsen from NICE
NICE have issued a positive Final Evaluation Document (FED) for Volanesorsen for the treatment of FCS for routine care on the NHS in England. “Volanesorsen is recommended as an option for treating familial chylomicronaemia syndrome in adults with genetically confirmed familial chylomicronaemia syndrome who are at high risk of pancreatitis, and when response to diet…
Read MoreCaldo Verde with Chicken (Portuguese Cabbage Soup)
A main course soup based on Portuguese Caldo Verde.
Read More