Lynn

By cypheradmin | 3 March 2020
Lynn

I was diagnosed with familial lipoprotein lipase deficiency when I was 15 years old. I am now 18 years old and I don’t know much about it. None of the doctors I’ve seen know much either.

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Jill

By cypheradmin | 5 February 2020
Jill

The restrictions that LPLD – especially with diabetes – put on what’s possible for me to eat make it almost impossible to find something I can eat spontaneously. Eating out becomes a tiresome process of ensuring that whoever is catering will provide me with something suitable. Often this can mean something very basic and not particularly appealing.

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Tell your story!

By cypheradmin | 3 January 2020

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Glybera gets a second chance

By cypheradmin | 16 October 2019

Watch two videos the first is about renewed hopes for Glybera.  The second is the story of the development of the therapy and how it came to taken off the market.   Read more FCS news FCS News

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New routes to clinical diagnosis of FCS

By cypheradmin | 11 October 2019

This paper explores the way in which clinical results can separate patients with FCS from patients with severe hypertriglyceridaemia – important when advising on treatment options and where genetic testing is hard to come by, or is very slow. Read Here Read more FCS news FCS News

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European Athersclerosis Society

By cypheradmin | 30 September 2019

Rare dyslipidaemias, from phenotype to genotype to management: a European Atherosclerosis Society task force consensus… Rare dyslipidaemias, from phenotype to genotype to management: a European Atherosclerosis Society task force consensus statement including a detailed section on familial chylomicronaemia syndrome, symptoms and management. Download the full review below. Download Read more FCS news FCS News

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