Massive congratulations and thanks to Fiza Javed whose essay was one of the runners up in the annual Student Voice Prize and is now published on the Orphanet Journal of Rare Diseases, You can read the essay here.
Fiza's essay "One in a Million Disease with a Million Dollar cure' answers the question: Access to treatment can vary greatly between rare conditions and even between individuals living with the same condition. This could be because:
- There is no disease-modifying drug, or there is one that the patient can’t access due to eligibility or location.
- There is a drug that is anecdotal known to alleviate symptoms but it isn’t licensed.
- Or there is a drug on trial but the patient isn’t eligible.
Discuss how access to treatment, management and research can impact a person’s mental wellbeing.
