We're delighted to announce that we have joined the European FH Patients Network.
The European FH Patient Network is a charity that is actively working to improve Europe-wide awareness, understanding, and access to diagnosis and treatment of inherited lipid conditions, (specifically FH, HoFH, Lp(a), FCS), so that all those impacted receive optimal treatment and support, resulting in longer and healthier lives.
This is a great opportunity to expand the reach of Action FCS to help to improve the lives of patients across the whole of Europe, working in collaboration with the patient and medical experts who are members of the network. You can read more about the organisation and the work that they do here.
FH Europe’s Chief Executive Magdalena Daccord, says
“This is an important milestone for FH Europe. For years our Network members have been working on supporting people living with this [FCS] very serious and ultra-rare condition without or little help from FH Europe. But this is about to change, and we hope that with the experience and the expertise Action FCS brings to the Network we will be more effective in responding to those community needs across Europe, increasing awareness and delivering more education with the help of a dedicated FCS Ambassadors Programme."
FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.
