Living with FCS can be very isolating.
Connecting with others who understand the daily challenges of living with FCS can be an important part of breaking the isolation. Sharing tips and strategies about managing daily situations, and having sympathy and understanding when things go wrong, can really help to make life a little easier. Watch our film in which patients talk about the importance of meeting others affected by FCS, and learn about the different ways you can connect.
Living with FCS can be very isolating.
Connecting with others who understand the daily challenges of living with FCS can be an important part of breaking the isolation. Sharing tips and strategies about managing daily situations, and having sympathy and understanding when things go wrong, can really help to make life a little easier.
There are a number of online support groups you can access. If you would like to meet others with the condition in person we will try to connect you, please email us here.
Patients at our first patient meeting in November 2015. Most of us had never previously met anyone with FCS.
A closed facebook group based in the UK with patients from all over the world.
